You are not alone!

According to Orphanet, the prevalence of MMIHS is unknown but has been reported in 230 patients. Therefore, in an effort to provide support and resources for those affected by it, we have created this map so that families who have experienced this rare syndrome can connect with each other.

We’d love to hear from you! If you would like to get in touch with one of the families in a given location please contact us. If you, yourself would like to place a pin or know someone who would please complete this short 4 question survey and we’d be happy to add you to our map!