The MMIHS Foundation is a volunteer non-profit organization dedicated to bettering the lives of those affected by MMIHS through the cultivation of a supportive and resourceful community which promotes advocacy, awareness, education, and research.
2014 – The support Group
In 2014, Sue Koprucki, the mother of a daughter with MMIHS, created the one and only online support group for MMIHS patients and their family members.
2016 The Website
In September of 2016 the rights to www.mmihs.org were purchased and a group of MMIHS family members came together to create an online resource that would overtake the outdated articles that once topped the searches and replace it with current information as well as hope and support for families impacted by MMIHS. There were 21 members in the support group before the creation of the website. Currently there are 190 members and counting.
2017 NPO Status
On August 15th, 2017 we became a certified non-profit!
2018 – First Annual MMIHS Day!
On September 8th, 2018 we held our first ever MMIHS Day! Every year since we have continued to use this day to come together to generate awareness and support for those who are affected by MMIHS.
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The Past
In the past there weren’t any groups to advocate for the MMIHS community so babies endured unnecessary testing and misguided treatment just to be given a diagnosis and news that they weren’t suppose to live past their first birthday. Other families have lived with the diagnosis for years and haven’t ever met another family like them or even knew they were out there. Others still have been misdiagnosed or undiagnosed all together.
We have learned from the past and we know that together we are better. So a group of one became two, two became three and so on, families from the US welcomed families from Germany, Isreal, Tawain and more…an idea became a website and a website became The MMIHS Foundation.
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The Present
If your life has been impacted by someone with MMIHS you have certainly learned the value in living in the present. With MMIHS you never know what the next day, hour, minute, or even second will bring and you are constantly reminded that the future is a privilege we might have, not a right that we are given.
The MMIHS Foundation plans to take full advantage of the present by bettering the lives of those affected by MMIHS through the cultivation of a supportive and resourceful community which promotes advocacy, awareness, education, and research.
A donation to our organization can go a long way in making that possible!
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The Future
We’ve learned from the past, we live in the present, and we definitely believe in the future and if you are here supporting us that means that you do too! One of the most amazing things about a change is that all of us have the opportunity to help determine what the future will look like. We are a small community that needs a big voice so each and every penny we raise will help us to further our mission and shape the future for all those affected by MMIHS. To read more about what our future holds visit the following link.